Never let the final straw be the final straw when it comes to life 💖

Hi Guys:)!

So I'm currently sitting on my picnic bench in my garden listening to music to try and chillax! The past few months have been a major struggle with my chronic tummy problems. I rang the hospital and I'm on a ten month waiting list to see a gastroenterologist to help me manage day to day life. It's got to the point where every day my tummy is so swollen I can't breathe, I'm so tired I spend hours sleeping just to function, I'm on omeprazole, ranitidine, mebeverine, colpermin, panadol and sometimes buscopan and ibuprofen just to get the pain to a level where I can go to town for an hour or two and not be crippled.

This in turn has had a major effect on my diabetes. I'm on a trial period using a new piece of equipment called the freestyle libre which is a mini disc that has a canula injected into my subcutaneous tissue and reads the blood glucose through the fluid rather than cappillary blood to lower the amount of finger pricks I have to do in a day. My diabetes is really well controlled in general but the graph on this reader is showing my sugar levels are dreadful at the moment. So many high and low readings which in turn have caused blood vessels to burst in my eyes, numbness in my fingers and overall a horrible feeling.

The only way to manage this any longer is to go to A&E and refuse to move until I have a diagnosis but even that proves complicated as the doctors always think it's my appendix and so far it never has been.

My anxiety and mood has been knocked dramatically as I can't physically imagine living my life like this. The feeling of not knowing what friends can put up with a friend who is so often in bed or hospital sick. Holding down a job is a scary thought, completing my coursework is a worry because some days I just don't want to have these issues and some days I wish I could go out and work hard and not be in pain but why think like that? This is the life that I've been given and life is a blessing, one to never be taken for granted.

So the best things I've been doing recently to cope and some of you may find this helpful others not but these are just ideas.

If I get any energy I go for a walk and never waste a good day. If you've been blessed with a good day never ever waste it because the memories of that good day can help you through two months of bad days!!

If I feel lonely I text/ring my friends. Don't isolate yourself anymore than you must, stay in contact, make new friends because trust me I know you feel like a burden and that no one needs your issues but there are so so many lovely genuine people who look past your illnesses and see you, the real you, your likes and dislikes, food movies sports whatever they care about you and you are never alone in this world.

If you can't get to a party heck blast your ipod in your room and sing your heart out.. It works.. I know from experience!

On a serious note if there are days where you've just given up because that happens, and you feel you can't take anymore or that you don't want to spend another day living, tell someone. I plead with you. I have been that person sitting at midnight contemplating which choice to make. Trying to find a strong enough reason to make me stay alive. I know how hard and lonely and heartbreaking chronic illnesses are. To this day I would lay down my life for anyone needing help. You would be suprised who would sit up at 3am with you just to prevent you doing something irreversible. This world has evil in it, but this world has so much love.

These are just a few tips to help your fight. If you don't know me on a personal level these messages are still for you. I can see where my audience comes from. I have 3000 loyal views which come from indonesia, the Netherlands, Russia, Australia and so many other countries. If you are sitting reading this in the furthest place away from me on earth, I'm still here and still a human and I still care so never say no one cares about you because I do.

If you are my friend and don't want to let me know you read my blogs but any of these issues effect you, please don't sit quiet or nervous, if it's 3am I will still sit up to help you if you need it!

All my love

E x

H.O.P.E

Hi everyone:)

So tonight I'm going to talk about a topic which tends to not be spoken about because it's embarrassing.

I tell everyone I have a digestive disorder because to be honest 18 years later the doctors still can't diagnose what is precisely wrong with my tummy they just know that my digestive system and bowel do not function normally. They think it is IBS but so far they can't rule out IBD without further investigations.

Out of all my illnesses this is by far my most disabling. At the moment I'm going through a flare up. Every day is a struggle. I can't remember a single day I have woken up in my entire life without feeling sick or sore due to my tummy.

Everyday I swallow so many tablets morning noon and night. I take strong painkillers and sometimes have to take antisickness pills to keep the pain relief down. If it gets so severe I end up in a&e on a drip.

An IBS flare up is so severe that some women compare it to childbirth. Not all but some. Whenever I have one I can't breathe, I can't move and sweat beads roll off my face. I have sat screaming for six hours straight before from the sheer agony I am in. I sit in one position so long as I can't move a muscle that I get nerve pains in my legs. It gets so severe that most times I throw up just from the pain.

Any time a doctor sees me they send me to a&e incase it is my appendix but it never has been so far.

 This is a very lonely and scary illness. The idea of getting out of bed with extreme fatigue is unfathomable. The idea of leaving a bathroom is unthinkable.

I have had every blood test, ultrasound, tubes, endoscopies, barium swallows and x rays that I can have.

This is a topic that needs more support and awareness! Chronic illness is so lonely and debilitating but I refuse to give up and I will continue to raise awareness!

Never give up no matter how lonely or how much pain you are in, you are loved!

E x :)